To get an impression what the PKAN disease is all about, every day another battleā€¦

We thank Janis Healey, grandma of Riley (8 years old), for her openness and effort to raise funding for a cure against PKAN. Worldwide everyone is putting in all effort to make sure Stichting Lepelaar (NL) and the Spoonbill Foundation (USA) can develop and produce a cure as soon as possibleā€¦ cause everyday counts!

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