The first animation of the Kans for PKAN Children foundation is a fact! It premiered on Rare Diseases Day 2020, February 29th, 2020. The animation dwells on information that is needed when you as parents have just heard the diagnosis PKAN for your child.
In the future, a number of animations will follow, on topics that are important when your child has PKAN. It will cover medical topics, but also what it means for the brothers and sisters. The animations will also be translated in English, for worldwide usage.
If there are topics that you want to see, email us at info@maakjesterk.nu!
The animation was made by Henk Visser of DigiEmotion and the beautiful voice is by Marlies Zomers.
Animation 1: “After the Diagnosis”
Op dit moment overleeft geen enkel kind de ziekte PKAN. Ze worden niet ouder dan 15 jaar. Waar eerder geen behandeling mogelijk leek, is onderzoek nu in volle gang en komt een oplossing steeds dichterbij. Samen gaan wij dat mogelijk maken. Help je mee?
About PKAN
PKAN (Pantothenate Kinase-Associated Neurodegeneration) is a hereditary disorder that is categorized in the group of distinct rare disorders featured by an accumulation of iron in the brain of young children. Many individuals with the classic form of PKAN lose the ability to move or walk independently between 10 and 15 years after the initial indication of symptoms and will therefore require a wheelchair by their mid-teens. They often lose the ability to walk, to talk, to swallow and their vision. All this while they are often in a full state of awareness as the mental ability of children suffering from PKAN is not always affected. It is progressive and will ultimately result in the patient’s death at a young age.
